Aaryan Dinh-Ali posted an update October 22, 2018
Our lives as parents were forever changed on Friday November 13, 2015. When everything seemed perfect and life was great, what more could be better – family and a child who was as healthy as can be.
Aaryan was admitted to SickKids in Toronto Canada for what looked like a full body rash and extensive gum bleeds – and by the end of the evening we were admitted and he was given his very first blood product transfusion. After several more transfusions and a bone marrow biopsy, he was diagnosed with Very Severe Aplastic Anemia – a bone marrow failure disease and we were told his best chance of a cure was through a bone marrow transplant. Little did we know, that this was almost impossible to finding him a match due to his ancestral lineage – Genetic make up – however one wants to call it. He is of mixed race – Afghan/Vietnamese and his best chance was to find a match within those genetic perimeters. Aaryan ended up in the ICU a few weeks later due to brain hemorrhaging, retinal bleeds and severe low blood counts – he fought through that and Drs. had no choice but to put him through an immunosuppressant drug therapy. We are fortunate that Aary responded and he is currently in remission. BUT, we know that if and when he does relapse, we will need to call upon others to give him his fighting chance.
Match4AAry was formed within a few days after his initial diagnos and we launched worldwide to find our son his match , after adding thousands of individuals on to stem cell registries across the world, a match has still not found.
Aary continues to beat his odds against Aplastic Anemia, but we need the kindness of strangers to open up their hearts to give hope to him and so many other patients who are waiting for that life saving match.
Consider saving life – swab and register to a stem cell registry.
Jenny, Ali and Aaryan