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Natassa Adamou

Acute Lymphoblastic leukaemia
Acute Lymphoblastic leukaemia
Acute Lymphoblastic leukaemia
Acute Lymphoblastic leukaemia
Acute Lymphoblastic leukaemia
Acute Lymphoblastic leukaemia
Acute Lymphoblastic leukaemia
Acute Lymphoblastic leukaemia
Acute Lymphoblastic leukaemia

À la recherche

Ethnicité Pourquoi est-ce important? ?
BLANC
Pays
Royaume-Uni
Statut
À la recherche
Date de diagnostic
10 déc. 2024
Maladie
Acute Lymphoblastic leukaemia
Son histoire

Following a diagnosis of chronic myeloid leukaemia (CML) in April, Natassa Adamou was told a few weeks ago her condition has progressed to acute lymphoblastic leukaemia (ALL.) To treat this rare blood cancer Natassa, now 19, needs chemotherapy and an urgent stem cell transplant from a matching donor.

Since the ALL diagnosis Natassa’s older sister, Sofia, has taken to social media to encourage those eligible to sign up to the stem cell register. Sofia’s social media campaign highlights how anyone could be a lifesaving match for someone with a blood disorder or a blood cancer like her little sister.
“You never think it's going to be you or your family until it is, and then it's like your whole world is just turned upside down,” said Sofia, a business owner from Anerley, South London who has been working with stem cell transplant charities Antony Nolan & DKMS and Swab all over the world in Canada and USA and also Australia.

Natassa, who her sister describes as a bubbly personality with a passion for theatre, reading, playing with her cat Chico and Formula 1 was studying to be a certified makeup artist, specialising in prosthetics and special effects, before she began experiencing symptoms last Christmas including extreme tiredness and a seizure.
Extensive tests resulted in a diagnosis of CLL which was being treated with chemotherapy tablets up until earlier this month when Natassa became unwell. Recently she was told that her condition has developed into ALL which needs to be treated with chemotherapy and ultimately, a stem cell transplant.

Sofia was tested to see if she is a match to her sister Unfortunately it was recently found out she is not a match and therefore Natassa will need an unrelated donor. The donor will be somebody who has signed up to a stem cell register through Antony Nolan or DKMS.

“I am trying to get social media up i’m running and starting my campaign to get this to as many people as possible,” Sofia said. “I know in doing this I'm not just helping my sister; I am helping many other people that are looking for donors,” she added.
Referring to her Instagram video which had 100,00 views in three days Sofia said, “Whether that helps my sister, or it helps someone else it’s important to do. Miracles can happen. You never know you might have a friend that might be a match, and you never would have met that friend if it wasn't for something that you did in your life. Life has a very mysterious way of doing things.”

Sofia and her family, who have owned the Marlow Fish Bar on Marlow Road in Southeast London for 63 years, are appealing for signups to the register not just in the UK but in Cyprus too due to their Cypriot heritage.
People with heritage from different parts of the world can have a different chance of finding a matching unrelated donor. This is because you can be more likely to have a rare tissue type if your ancestry is from particular regions of the world.
Since her sister’s blood cancer diagnosis Sofia has realised the lack of awareness around stem cell registers and donation. Talking about the process of swabbing your mouth to sign up to the register she said, “It takes 60 seconds of your day but could potentially save someone’s life.”

As part of our efforts to help find a donor match, we are launching a massive initiative to get as many people as possible registered in the stem cell donor registry.

Sofia has been tireless in her efforts, successfully mobilizing campaigns across Uk Cyprus and gaining significant media attention. Family members in Cyprus hosting in person drives at markets and events. She has featured on Sky News and various radio stations, raising awareness and spreading hope. Currently she is in talks with major TV networks to bring this cause to an even larger audience.

‘’In just the last 30 days, we’ve had over half a million views on our Instagram page showcasing the power of community action’’ said Sofia. We are currently now expanding our reach and speaking with partners in Canada and the USA to initiate a worldwide campaign, aiming to register as many donors as possible.

Every potential donor registered could mean a step closer to finding a match for Natassa and countless others facing similar battles. We invite you to join us in this pivotal movement—your support can make a remarkable difference.

Please feel free to reach out if you'd like to learn more about how you can help or get involved.

Every share on social media counts! Help us spread the word and encourage your friends and family to register as donors.

Thank you for your support!

On our Linktree page you will find all the links on how to sign up to the registers.

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AIDEZ QUELQU'UN COMME Natassa Adamou

Natassa
Adamou
D'autres survivants D'autres combattants
D'autres survivants D'autres combattants
D'autres survivants D'autres combattants
D'autres survivants D'autres combattants
D'autres survivants D'autres combattants

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